The RSV Patient Network is mainly composed by parents whose children were hospitalised with RSV infection during infancy. Image RSV Patient NetworkRSV Patient Network was founded in 2016 when the RESCEU Patient Advisory Board identified the lack of a patient organisation representing people that have experienced severe RSV infection. Establishing a patient network was needed to bring (parents) of RSV patients together and to collectively take action in RSV awareness raising in Europe. The RSV Patient Network is mainly composed by parents whose children were hospitalised with RSV infection during infancy. The network is currently welcoming other population groups who are also at risk of contracting RSV, such as pregnant women and elderly people. Their main objective is to increase public awareness of RSV disease. In their efforts to achieve this goal, they have established a Patient Advisory Board, where they are involved in various RSV research projects including PROMISE. The PAB represents the patients’ perspective in all the activities carried out in PROMISE. Members of this board use their valuable hands-on experience as patients or parents of RSV patients to make an independent and valuable contribution to the relevance, quality and results of RSV research.Relevant LinksFind out more about the RSV-PN This article was published on 2024-09-24
