Orphans Unite: ChILD better together – EUropean management platform for childhood interstitial lung diseases ChILD-EU database and observational study Childhood Interstitial Lung Diseases (ChILD) are a group of rare diseases of the lung: most conditions have a poor outcome. The project will gather information into a Europe-wide database and also enable outcomes to be studied. At the time of diagnosis all patients in the database will have their diagnosis and treatment reviewed by an expert team to ensure diagnostic validity. The information that we get from this study will help us to learn what approaches to treatment may give better outcomes, and use these in future studies. Current study protocol (pdf) Document ChILD-EU observational study protocol v5 (197.63 KB / PDF) Image Chief Investigator: Prof Steve Cunningham Number and location of participating sites (by region/ country): Up to 20 sites in UK (children’s hospital). Studies in France, Germany, Italy and Turkey will collect similar information to add to the UK data in the database. ISRCTN number: ISRCTN23400701 http://www.controlled-trials.com/ISRCTN23400701/ChILD-EU Funder: European Union Start and End date of grant award: started 01 Dec 2012 and will end 30 November 2016 Current Status: Published Document ECTU International management platform for children’s interstitial lung disease (977.99 KB / FULL_) Website: http://www.childeu.net UK GDPR Privacy Statement: If you have participated in this study and would like to read how it complies with UK GDPR, please read this document. Document ECTU CHILD EU GDPR privacy notice (75.54 KB / PDF) Contact details : Child UK trial office child-uk@ed.ac.uk; Tel: +44 (0)131 537 3846 / 3878. Dr Steve Cunningham. ECTU Involvement : Trial management, Statistics, Data Management (UKCRC) This article was published on 2024-09-24
