Project: PACE

A Patient-centred approach to understanding the barriers to ACcessing and Engaging with asthma care

Adults and children living with asthma in the UK have worse control and suffer more asthma attacks than people in other high-income European countries. UK guidelines recommend management that could improve outcomes but, for a range of reasons, best (or even adequate care) is too often not accessible or does not engage patients.

What does the PACE research programme aim to do?

Our long-term aim is to improve services so that people with poorly controlled asthma can access and engage with care that meets their individual needs and preferences. However, before we develop new ideas, we need to understand the range of barriers that prevent people with asthma accessing and engaging with care in the UK.

In this study we will:

  • Summarise findings from other research to find out what other countries or places across the UK have done to improve how people with asthma engage with care.
  • Use routine health service data to identify areas in the UK where asthma outcomes are particularly poor and explore how people in those areas use (or not) asthma services.
  • Scope the range of ‘real world’ problems faced by different communities and care providers by interviewing people with asthma and doctors and nurses in general practices and hospitals about asthma care in their area.

When we have understood why people with asthma find it difficult to access or engage with appropriate care, we will develop a proposal for future research to improve access to and engagement with asthma services. In a full programme grant, we can design, test, refine and evaluate novel cost-effective service models to provide good asthma care for all.

Get involved

The project is currently recruiting people to take part in interviews. We are particularly looking to speak with people across Leicester, Swansea and the Highlands in Scotland. To take part, please contact the study team at PACE-PDG.admin@ed.ac.uk.

 

If you know someone who may be interested in getting involved, please share our promotional flyer with them.

Key People

Headshot of Hilary Pinnock

Hilary Pinnock

Professor of Primary Care Respiratory Medicine

Based at: The University of Edinburgh

Headshot of Erol Gaillard

Erol Gaillard

Associate Professor and Honorary Consultant Paediatric Respiratory Medicine

Based at: Respiratory and Leicester Institute for Lung Health, University of Leicester

Director of Research

Based at: NIHR Leicester Biomedical Research Centre

Headshot of Natalia Reglinska-Matveyev

Natalia Reglinska-Matveyev

Centre Manager

Based at: The University of Edinburgh

Headshot of Paula Mika

Paula Mika

Centre Administrator and Postgraduate Training Coordinator

Based at: The University of Edinburgh

Headshot of Huayi Huang

Huayi Huang

Research Fellow

Based at: The University of Edinburgh

Headshot of Irtiza Qureshi

Irtiza Qureshi

Research Fellow

Based at: University of Leicester

Headshot of Tracy Jackson

Tracy Jackson

Patient & Public Involvement (PPI) Lead

Based at: The University of Edinburgh

View Tracy's AUKCAR profile

Headshot of Gwyneth Davies

Gwyneth Davies

Professor of Respiratory Medicine

Based at: Swansea University Medical School

Honorary Respiratory Consultant

Based at: Swansea Bay University Health Board

Headshot of Emma Kinley

Emma Kinley

Research Fellow

Based at: Liverpool John Moores University

View Emma's AUKCAR profile

Headshot of Jenni Quint

Jenni Quint

Professor of Respiratory Epidemiology

Based at: School of Public Health at Imperial College London

Honorary Consultant Physician in Respiratory Medicine

Based at: Royal Brompton and Imperial College London NHS Foundation Trust

Headshot of Jessica Sheringham

Jessica Sheringham

Senior Research Fellow

Based at: Department of Applied Health Research, University College London

Headshot of David Lo

David Lo

Research Fellow

Based at: University of Leicester

View David's AUKCAR profile

Constantinos Kallis | Imperial College London

Deborah Fitzsimmons | Swansea University

Medina Maluk | University Hospitals of Leicester NHS Trust

Martin Williams | University of Leicester

Manish Pareek | University of Leicester

Funding

This study is funded by the National Institute for Health and Care Research (NIHR) [Programme Development Grants (PDG), reference number NIHR206509]. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.