A Patient-centred approach to understanding the barriers to ACcessing and Engaging with asthma care Adults and children living with asthma in the UK have worse control and suffer more asthma attacks than people in other high-income European countries. UK guidelines recommend management that could improve outcomes but, for a range of reasons, best (or even adequate care) is too often not accessible or does not engage patients. What does the PACE research programme aim to do? Our long-term aim is to improve services so that people with poorly controlled asthma can access and engage with care that meets their individual needs and preferences. However, before we develop new ideas, we need to understand the range of barriers that prevent people with asthma accessing and engaging with care in the UK.In this study we will:Summarise findings from other research to find out what other countries or places across the UK have done to improve how people with asthma engage with care.Use routine health service data to identify areas in the UK where asthma outcomes are particularly poor and explore how people in those areas use (or not) asthma services.Scope the range of ‘real world’ problems faced by different communities and care providers by interviewing people with asthma and doctors and nurses in general practices and hospitals about asthma care in their area.When we have understood why people with asthma find it difficult to access or engage with appropriate care, we will develop a proposal for future research to improve access to and engagement with asthma services. In a full programme grant, we can design, test, refine and evaluate novel cost-effective service models to provide good asthma care for all. Get involved The project is currently recruiting people to take part in interviews. We are particularly looking to speak with people across Leicester, Swansea and the Highlands in Scotland. To take part, please contact the study team at PACE-PDG.admin@ed.ac.uk. If you know someone who may be interested in getting involved, please share our promotional flyer with them. Download the PACE study flyer Key People Hilary PinnockProfessor of Primary Care Respiratory MedicineBased at: The University of Edinburgh Erol GaillardAssociate Professor and Honorary Consultant Paediatric Respiratory MedicineBased at: Respiratory and Leicester Institute for Lung Health, University of LeicesterDirector of ResearchBased at: NIHR Leicester Biomedical Research Centre Natalia Reglinska-MatveyevCentre ManagerBased at: The University of Edinburgh Paula MikaCentre Administrator and Postgraduate Training CoordinatorBased at: The University of Edinburgh Huayi HuangResearch FellowBased at: The University of Edinburgh Irtiza QureshiResearch FellowBased at: University of Leicester Tracy JacksonPatient & Public Involvement (PPI) LeadBased at: The University of EdinburghView Tracy's AUKCAR profile Gwyneth DaviesProfessor of Respiratory MedicineBased at: Swansea University Medical SchoolHonorary Respiratory ConsultantBased at: Swansea Bay University Health Board Emma KinleyResearch FellowBased at: Liverpool John Moores UniversityView Emma's AUKCAR profile Jenni QuintProfessor of Respiratory EpidemiologyBased at: School of Public Health at Imperial College LondonHonorary Consultant Physician in Respiratory MedicineBased at: Royal Brompton and Imperial College London NHS Foundation Trust Jessica SheringhamSenior Research FellowBased at: Department of Applied Health Research, University College London David LoResearch FellowBased at: University of LeicesterView David's AUKCAR profile Constantinos Kallis | Imperial College LondonDeborah Fitzsimmons | Swansea UniversityMedina Maluk | University Hospitals of Leicester NHS TrustMartin Williams | University of LeicesterManish Pareek | University of Leicester Funding This study is funded by the National Institute for Health and Care Research (NIHR) [Programme Development Grants (PDG), reference number NIHR206509]. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. This article was published on 2024-11-29