Our partners, and why we are working with them. We are committed to developing research for social good and want to learn from organisations who work closely with the epilepsy and infantile spasms community. The EPIC project is shaped by families with lived-experience of infantile spasms, and we are committed to meaningfully involving families, clinicians and other stakeholders in all aspects of our work.Our EPIC team is working closely with partners with strong links in the UK and partners in a range of sectors (e.g. charities, technology) to help us reach our goal. You can read about the wonderful work our partners do by visiting their websites below. UK Infantile Spasms Trust Established in 2017, UKIST provides vital support to families with children affected by the rare seizure disorder infantile spasms (IS), also known as West syndrome.The charity offers a lifeline to anxious parents via its online community and works alongside medical professionals to raise awareness of this little-known condition.Visit the UK Infantile Spasms Trust website Epilepsy Research Institute UK The Epilepsy Research Institute’s mission is to radically advance research into the causes, prevention and treatment of epilepsy and its associated conditions.By increasing understanding and accelerating innovations, they are working towards a vision of a life free from epilepsy.Visit the Epilepsy Research Institute UK website Epilepsy Scotland Epilepsy Scotland works with people living with epilepsy to ensure that their voice is heard. Through their various support options for those living with epilepsy and their families, they provide a helpline and community.Visit the Epilepsy Scotland website SYNGAP1 UK SYNGAP1 UK is a national organisation supporting individuals and families affected by SYNGAP1-related intellectual disability.Their mission is to connect the SYNGAP1 community across the UK, raise awareness, and advocate for better understanding, care, and research. Visit the SYNGAP1 UK website BrainsView BrainsView is a developer of advanced clinical software that delivers real-time insights into brain activity.Their products help support accurate assessment and monitor brain conditions.Visit the BrainsView website Newcastle University Academics from Newcastle University working to understand how socioeconomic health inequalities affect people with epilepsy will help us to ensure that the work in our project is equitable and fair to families from diverse backgrounds. UCB Pharma UCB is a global biopharmaceutical company focused on solutions for people living with severe diseases including epilepsy.They are interested in engaging with the EPIC team as the project progresses. This article was published on Monday 6 July 2026
