This project is based at CHRF in Bangladesh, MAHAN, CMC and KEM in India, UM in Malaysia & AAIP in Pakistan. Overview Project title: 4CCORD: Defining burden (PhotoVoice) Programme: Non-Communicable Diseases Based at: Child Health Research Foundation in Bangladesh, MAHAN Trust, Mahatma Gandhi Tribal Hospital, Christian Medical College Vellore and KEM Hospital Research Centre in India, Universiti Malaya in Malaysia & The Allergy & Asthma Institute in Pakistan Start date: End date: Principal investigator: Project team: Hilary Pinnock, Nik Sherina Hanafi, Hani Syahida Binti Salim, Samir Saha, Shahidul Islam, Ashish Satav, Sanjay Juvekar, Dhiraj Agarwal, Rita Isaac, Harsh, Biswajit Paul, Osman Yusuf, Jayakayatri Jeevajothi Nathan, Ee Ming Khoo Background There are widespread concerns amongst RESPIRE partners about the lack of awareness of the burden of chronic respiratory disease (CRD) within their communities, healthcare services and amongst policymakers. Over the course of this project, people in Bangladesh, India, Malaysia and Pakistan with CRD will be interviewed about the human burden of living with CRD. Using the PhotoVoice methodology, participants will take and caption photographs to yield rich insights into the human burden of living with their conditions. Interviews will also be conducted with professionals, health service managers, local/state/national leaders to build a comprehensive understanding of CRD in each setting. Aim and Impact Through photographs, this project aims to explore the human burden of living with CRD. Each photograph, along with its caption, captures the socio-cultural stories behind living with CRD and amplifies the participants’ voices on issues that matter to them. Visual storytelling is a powerful communication tool. Participants will be offered opportunities to showcase their photographs to raise awareness of the human burden of living with CRD. Examples include submission to local photography exhibitions for engagement with communities, or inclusion in printed booklets aimed at stakeholders. Related Links This research is part of the 4CCORD programme, comprised of the following projects: 4CCORD PhotoVoice 4CCORD Survey & Spirometry 4CCORD Quality Improvement & Upskilling This article was published on 2024-09-24