Moni Choudhury, RESPIRE’s Data Science & Methodology Coordinator, reflects on the learning gained from data management webinars held in collaboration with NIHR Global Health Groups, ASTRA and RECHARGE In January 2021, RESPIRE co-hosted a webinar series along with the NIHR Global Health Groups, ASTRA and RECHARGE entitled ‘Global health research: Challenges with data management and data sharing across continents'. Moni Choudhury, RESPIRE’s Data Science & Methodology Coordinator, reflects on the event and what learnings were gained. Research data management (RDM) are integral activities in any research project. Ensuring the integrity and transparency of all data activities can be challenging for researchers in any subjects, especially when you work on research projects across multiple international partner countries. The need for robust systems and supported infrastructures for data management and sharing are important as the scientific world adopts open research data principles. These issues have become prominent in the times of COVID-19. Research data management across continents With the NIHR Global Health Groups, ASTRA (based at University of York), and RECHARGE (based at University of Leicester), we aspired to share our collaborative experiences of RDM and data sharing initially with respiratory health researchers working in international projects. We wanted to explore the barriers and opportunities of RDM when you have multiple international partners. As well as speakers from the lead institutions in the UK, we featured the experiences of researchers in our LMIC partner countries, with presenters from India, Malaysia, Pakistan and Uganda. We had over 150 participants taking part in the webinar over three days, spread geographically from Latin America to South Asia. Exploring the research data management journey Image RDM Training Needs survey responses\nCredit: Mark Orme, RECHARGE/University of Leicester Our webinar series covered some key steps in the RDM journey, from data management planning through data collection and quality & assurance, to data sharing and data depositing. We aimed to demonstrate that having robust RDM systems in place can enhance the integrity of the research and the transparency of reported results. This, in turn, adds to the data collected and ensures its longevity for future reuse and population health improvements. We acknowledged that funding is needed to support local RDM infrastructures. We surveyed attendees about their training needs across the RDM journey. There is a demand for training across all areas, but in particular for data management planning, policy and data analysis. There is also a need for more specific funding for training in data management and for a dedicated database manager. Help the team understand RDM training needs: Complete the RDM training needs survey Full results of the survey will be presented at the IPCRG 10th World Conference in May 2021. We gathered feedback on the webinar series and it was great to see comments in tune with our aims for the audience. I'm very pleased to have been able to join the sessions as I now feel better informed with regard to planning for data management in my own study. Event attendee Webinar resources We’re pleased to bring together the sessions as a resource for researchers interested in deepening their understanding of research data management in an international context. COVID-19 and robust & timely data management and data sharing | Professor John Norrie - RESPIRE – University of Edinburgh Professor John Norrie - RESPIRE - University of Edinburgh COVID-19 and robust & timely data management and data sharing Presentation slides Document Professor John Norrie | COVID-19 and robust & timely data management and data sharing (1.43 MB / PDF) Global Health Research: Challenges with Data Management and Data Sharing across Continents | Professor Ravi Mahrotra - ASTRA, India Cancer Research Consortium, India Professor Ravi Mahrotra - ASTRA - Indian Cancer Research Consortium Global Health Research: Challenges with Data Management and Data Sharing across Continents Presentation slides Document Professor Ravi Mehrotra | Global Health Research: Challenges with Data Management and Data Sharing across Continents (2.14 MB / PDF) Getting started with data management planning: RESPIRE experiences | Moni Choudhury - RESPIRE – University of Edinburgh | Dr Aimal Rextin – RESPIRE - Allergy and Asthma Institute, Pakistan Moni Choudhury - RESPIRE - University of Edinburgh Getting started with data management planning, including a video from: Dr Aimal Rextin - RESPIRE - Allergy and Asthma Institute, Pakistan Data Management Plan: My Experiences and Tips CRF and database design: RECHARGE real life example | Rogers Sekibira – RECHARGE - Makerere University Lung Institute, Uganda Rogers Sekibira - RECHARGE - Makerere University Lung Institute, Uganda CRF and database design: RECHARGE real life example MS ACCESS Database Design, Monitoring and Data Entry in Practice (Using ASTRA Example) | Dr Lu Han – ASTRA – University of York Dr Lu Han – ASTRA – University of York MS ACCESS Database Design, Monitoring and Data Entry in Practice (Using ASTRA Example) Presentation slides Document Dr Lu Han | MS ACCESS Database Design, Monitoring and Data Entry in Practice (Using ASTRA Example) (1.45 MB / PDF) Data quality, cleaning and assurance | Adrian Manise - RECHARGE - University of Leicester Adrian Manise - RECHARGE - University of Leicester Data quality, cleaning and assurance Data preservation and sharing | Moni Choudhury - RESPIRE – University of Edinburgh | Dr Hani Salim – RESPIRE – Universiti Putra Malaysia | Dr Dhiraj Agarwal – RESPIRE – KEM Hospital Research Centre, Pune, India Moni Choudhury - RESPIRE - University of Edinburgh Data preservation and sharing, including video presentations from: Dr Hani Salim – RESPIRE – Universiti Putra Malaysia Dr Dhiraj Agarwal – RESPIRE – KEM Hospital Research Centre, Pune, India Working across global health data borders: experience from INDEPTH network’s iSHARE initiative | Professor Tathagata Bhattacharjee & Professor Sanjay Juvekar – RESPIRE - KEM Hospital Research Centre, Pune, India Professor Tathagata Bhattacharjee & Professor Sanjay Juvekar – RESPIRE - KEM Hospital Research Centre, Pune, India Working across global health data borders: experience from INDEPTH network’s iSHARE initiative Reflections: global health research data management training needs – results from pilot and rollout of updated survey live | Dr Mona Kanaan – ASTRA – University of York Dr Mona Kanaan – ASTRA – University of York Reflections: global health research data management training needs – results from pilot and rollout of updated survey live Presentation slides Document Dr Mona Kanaan - Reflections: global health research data management training needs (975.13 KB / PDF) If you would like to give any feedback on the recordings, ASTRA, RECHARGE and RESPIRE would love to hear your thoughts. Complete the evaluation form RESPIRE Platform III: Methodology & Data Science Publication date 01 Mar, 2021
