CarePath-COPD

This project is linking social care data with healthcare and third-sector data to improve our understand of how health and social care systems work together for people living with COPD, using dashboards, predictive analytics, machine learning, AI and a co-designed theory of change to develop and test optimised care pathways within a regional health and social care partnership.

CarePath-COPD Healthcare Emblem

Project Summary

COPD is a progressive condition and the third leading cause of death worldwide, with UK mortality among the highest in the EU. It commonly occurs alongside multiple long-term conditions, contributes to health disparities, and carries serious consequences in an ageing population, including cardiovascular risk, respiratory failure and lung cancer. Early diagnosis and timely interventions addressing unmet health and social care needs are critical for quality of life. Social care is particularly important, enabling more effective self-care and reducing reliance on healthcare resources, yet it remains undervalued and underfunded relative to healthcare. A key barrier is the lack of data-driven insight into how health and social care systems work together for people living with COPD. This project will address this gap by linking newly available social care datasets with existing healthcare and third-sector data to understand how well the system operates as a whole, and what this means for optimising pathways of care. Using this integrated data, we will develop innovative dashboards and novel predictive analytics to inform a co-designed theory of change, supporting earlier detection and more effective intervention. Optimised care pathways will then be tested and iteratively improved within a regional health and social care partnership testbed.

The full name of this study is: Novel Integrated Health and Social Care Data Enabling Earlier Detection of COPD and Intervention Delivery Through Optimised Care Pathways (CarePath-COPD) 

Primary Contact

Principal Investigator and Project Lead | Professor Julie Jacko
julie.jacko@ed.ac.uk | carepath@ed.ac.uk 

Key People

 

NameRole 
Julie JackoPrincipal Investigator and Project LeadUsher Institute, University of Edinburgh
Gourab ChoudhuryProject Co-LeadNHS Lothian / University of Edinburgh
Pauline MastersPublic Member 
Tim WalshCo-Lead of Workstream 1Usher Institute, University of Edinburgh
Elouise JohnstoneContributor to Workstream 1Midlothian Health and Social Care Partnership in Scotland
Kathy HarrisonCo-Lead of Workstream 1DataLoch, Usher Institute, University of Edinburgh
Ahmar ShahCo-Lead of Workstream 2 and Capacity Building LeadUsher Institute, University of Edinburgh
Claire YerramasuCo-Lead of Workstream 2NHS Lothian / University of Edinburgh
Jack FarquharContributor to Workstream 1Midlothian Health and Social Care Partnership
Paul OkrojContributor to Workstream 3, PPIE expertiseChest Heart & Stroke Scotland
Peter SimpsonContributor to Workstream 3Chest Heart & Stroke Scotland
Tracy JacksonPPIE Lead and Contributor to Workstream 3Usher Institute, University of Edinburgh
Arif BudiartoPDRAUsher Institute, University of Edinburgh
Peyton BuettnerProject ManagerUsher Institute, University of Edinburgh
Annika ChambersProject ManagerUsher Institute, University of Edinburgh
Photos of the CarePath COPD team

Key Collaborations

Partners

Funders

NIHR-Research Programme for Social Care (RPSC)

This study/project is funded by the NIHR Research Programme for Social Care (Award ID NIHR209588). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.

National Institute for Health and Care Research (NIHR) website

Project timeline

This project is funded for 36 months from April 1, 2026 – March 31, 2029

Scientific themes

COPD; Integrated Health and Social Care; Health Inequalities; Care Pathways; Multimorbidity

Methodology keywords

Secondary administrative linkage and analysis; Dashboards; Predictive Modelling; Co-design and Theories of Change; Real-world testbeds 

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